I stare at you lying there
And my heart squeezes painfully
Tubes bursting through your flesh
Bright red with blood
Your small eyes glued shut
I search for any flicker of movement
As I stroke your head
And whisper soft words
It is heart breaking to see you like this
Not moving
Hooked up to so many tubes and wires
I would rather shut my eyes and not look
I hate seeing the glue on your body
Where your skin got sliced open
I hate seeing the proof of your pain
Lying before me
I just want to lift you
And cuddle you close
And let soft tears fall on your cheeks
I love you so
I’m so sorry you’ve been through this
I’m so sorry your heart wasn’t whole
Yet here you live on before us
A little boy with boundless courage
Sweet and gentle
Holding on while your health stood still
Heart failure and pneumonia
Fluid on the lungs
Oxygen taps and bandages and wraps
Yet you carried on
You haven’t lost your zest
Stilled and quiet, yes
But in time I know
Your eyes will open and show
That this journey was worth it
Every tear and moment of pain
Is but a puzzle in a bigger frame
And new journeys now open before you
Life has been restored to you
With a heart newly repaired and whole
You have taught us so much
Little boy lying silently there
You are a treasure we didn’t expect
We would give anything to take your pain away
But it is through your surgery pain
That your heart now beats properly again
We would give anything we can to you
Right now all I have is words
Of how much we love and admire you
Our little heart warrior son.